Blessed Are The Cracks

“You have a story—

a very important story that rests at the core of your being, a story to tell.

It is a story that has torn your heart into pieces, and it is a story of beauty, because your heart couldn’t have been torn without first having loved and somehow lost something you loved.

Now is the time to begin honoring your story…blessed are the cracked, for they shall let the light in.”

–Susan Zimmerman

 

Just wanted to share this with everyone.  I pray that everyone can cope well enough to have a good day.

 

Much Love & Many Prayers,

Cindy

 

Longing for Answers

This morning I woke up with a thousand things to do that were urgent. My brain jumped to screaming everything I needed to do, but my soul said, stop…breathe….go to the light for peace, then proceed.

When I got out of bed, I decided to spend time praising God for rewriting my story with the love of Jesus. I spent about 30 mins listening to Laren Daigle lastest album and only praising God. This is no quick fix, but the peace it brings is amazing.

Today was a productive day because I put my trust in God. I believe that is the reason why it went well and I accomplished so much even with a horrible cold and physical pain.

Now last year, my buzz word was “believe.” I saw that word pop up everywhere, and I had a very specific prayer answered surrounding the word believe. The verse, help me with my unbelief, changed my life, but it took 10 years for my prayer of “help me with my unbelief” to be answered.

Sometimes God doesn’t give an immediate answer. I had to wait for my answers. The wait was hard and sometimes, I felt like giving up. But the realization of seeing my prayer answered, even 10 years later, is a very powerful feeling of complete trust in God.

So, that’s why my buzz word for 2019 has been TRUST. I am seeing it everywhere in scripture and even in conversations with people that are giving me good advice…just wait, and trust that God has this. He knows what is going on and in his time, he will answer. I believe that to be true.

I’ve seen the power of prayer so many times that I cannot remember them all. I wish I had kept a journal of God’s blessings and provisions, but my memory will have to serve as my testimony. Sometimes my memory isn’t so great so it will take habits of spending time in the Bible and in prayer to constantly remind me.

Spending time in the Bible has always been hard for me because I am so ADHD. I have a hard time reading and even studying, so it takes extra effort. I have read the Bible through multiple times, but I always skipped Revelation.😃

Lots of people try to read the Bible through in a year, I think that’s a bit much. I always did it in two years and it went well without the extra pressure, but it’s ok if it takes you three or four years. Make the commitment to read 10 mins a day and you will get through reading the Bible in YOUR time and that’s ok.

Prayer can be in any form: music, writing, and the spoken word. I’m sure you can come up with more ways to pray. Everyone is different.

I believe it is just like talking to a beloved friend or confidant. Just talk. There is no special formula to get the job done. Just speak to Him and He will hear you, but His answer may be, wait, like it was for me. My answer developed over 10 years, but the answers came. In the meantime, I cultivated a relationship with Him. That makes it worth the wait and the pain journey easier.

So, if you are waiting on an answer that you desperately need, maybe about your chronic pain, just wait and while you wait, cultivate a relationship with God with prayer with praise and reading God’s word. Doing these things will not fail you. Trust in Him to bring your dreams to fruition. He’s that powerful.

I hope everyone is safe and that you feel the best you can in whatever situation you are in.

Much Love & Many Prayers,

Cindy

Bouncing Back

I am starting to become discouraged because of my limited abilities lately. I tell myself that I am not a burden, but sometimes I do not believe it. Even though it feels like it will never go away, I must remember that this level of pain is not going to be forever. But sometimes when you are in severe pain, that is all you can see and feel and taste, so it can be hard to change your perspective to a healthy one.

I will have a break in the severe pain eventually. I know this. I have begun to notice the rhythms of my pain. I’m learning to go with it instead of fighting every step. I may not be able to change that I am in pain, but suffering is optional.

After all the hoopla in the last post about the opioid symposium last week, I ended up not going to the event. I admit that I was disappointed that I would not be able to make a connection with my state representative, but my mom had a medical event. She is 83, and I am her caretaker. She is self-sufficient usually, but I did not want to leave her until I was sure that it was only a virus and nothing serious.

As soon as I have the time, I will request a visit with my state government officials to discuss how chronic pain affects every aspect of our lives and how their decisions will impact the chronic pain community.

I am not advocating for opioids around the clock for everyone. I want people to understand the reason there is such a backlash from chronic pain patients about wanting their opioids is because the government agencies are leaving us with no alternatives that actually work to replace the pain relieving medicines they want to take away. I believe every person I have spoken to about this issue has said that they would never take another opioid IF they had something else that actually worked to relieve their pain.

We need more research on pain because everyone experiences it differently. How we perceive pain is a complex interaction between mind and body. There is nothing that happens in the individual that affects only the mind or only the body. This interaction involves the nervous system and other factors, which include: genetic, culture, modeling, thoughts, stress, history of abuse, and trauma.

Right now pain research is lacking, but many people are deep in the trenches working tirelessly on changing the fact that we do not have affordable, effective alternative to the opioid medicines. You can also help by telling your story to your elected officials and make them understand our difficult situation, so more money is allocated for studies about pain.

My mom is feeling much better today, and I am getting back into my regular rhythm which helps me to feel the best I can. I have been in extra pain because of the rainy, hot weeks we have been having. Also, I cannot seem to bounce back from the trip to Chicago for the chronic pain support group training.  I am pushing the first organized meeting in September. I am praying that I will be able to get everything done in that timeframe.

What positive things do you do when you get discouraged by not bouncing back as fast as you would like from a flare? Do you get impatient and push through the pain or do you realize you need to up the self-care?

Much Love and Many Prayers,
Cindy

Help My Mission

Surf’s Up

I started writing an ethical will for my three sons a couple of years ago.

I’ve never finished it because I have so much I want to tell them. I just don’t know where to stop.

An ethical will is a way to tell your loved ones your values, blessings, life lessons, hopes, and dreams for the future. It’s simple really.

It can actually be about anything you feel is valuable information to pass down to the next generation, and you do not have to wait to die to pass it on to your family members.

You can give them a copy at any time for any reason, or no reason at all.

It is not a legal document of any kind.  It’s just thoughts and things you want to share.

Don’t we all have times when we wish we had one more moment in time to tell that special person something that we value deeply?

Here is just a tiny sampling of things I have written in my ethical will of words of wisdom I want to pass on to my children.

Life is hard no matter what path you go down.

The people beside you are hurting in some way just like you. 

That’s just reality.

EVERYTHING depends on how YOU react to it.

You can try to find positive instead of looking for the negative.

It’s harder work, but it pays off with dividends:    Joy.

I guarantee you’ll have joy if you learn to ride the wave instead of drowning in the wave. 

Much Love and Many Prayers,

Cindy

JULY Chronic Pain Support Group Update:
I am waiting on the final go ahead from the community agency that is allowing me to lead a chronic pain support group at their facility locally.
I will now be making the flyers and cards to give out at doctor’s offices locally and to put up around town.
The dream is slowly coming together.  I want to thank everyone that is supporting and encouraging me; specifically, my hubby.  This is probably one of the craziest ideas I’ve ever thrown at him but he has never lost a step right beside me.  Always & Forever.
Help My Mission of helping others live the best life they can with chronic pain.
________________________
Photo Credit (I could not bring myself to crop the photo – the colors were too awesome- so it is too large but beautiful) by Paul Larkin on Unsplash 

 

 

 

Sunshine Blogger Award

 

I would like to thank Wendi over at SimplyChronicallyIll for nominating me for the Sunshine Blogger Award.  Wendi shares her story of living simply with multiple chronic illness. Her words are honest, and I think you will be blessed by her thoughts so go check her out.

HERE’S HOW IT WORKS…

THE RULES

1.) Thank the blogger(s) who nominated you and link back to their blog

2.) Answer the 11 questions the blogger asked you

3.) Nominate 11 new blogs to receive this award, and write them 11 new questions

4.) List the rules and display the Sunshine Blogger Award logo in your post and/or on your blog.

 

Questions for me:

  1. What is your favorite thing about blogging awards?    I love reading the answers and getting to know other people around the world.  The questions take us a little deeper into each other’s lives allowing us to see that we have many things in common.  Having this community to interact with about our chronic pain/illness helps removes the feelings of isolation.
  2. If you were a sports car, which one would you want to be and why?  It would have to be a Ford Mustang.  The family business was an auto repair shop. My two older brothers had hot rods, and I was raised by them to love Fords.  I was more of a tomboy than a girlie-girl, and I remember it as a time to spend time with my brother.  I usually annoyed him to death but, secretly, I think he liked it that I was interested.
  3. If you could only eat one color of food for a week, what color would it be? My first thought is green.  There is so many good for you foods that are green: Brussel sprouts, broccoli, butter beans (I’m a southern girl), asparagus, peas, and more than I cannot think of right now.
  4. What is your favorite movie line and why? From Hope Floats:  “Childhood is what you spend the rest of your life trying to overcome. That’s what momma always says. She says that beginnings are scary, endings are usually sad, but it’s the middle that counts the most. Try to remember that when you find yourself at a new beginning. Just give hope a chance to float up. And it will, too…”  I saw this movie for the first time during a new beginning in my life and the movie just resonated with me.  This line always stuck with me.  It is one of my favorite movies.
  5. If you had to leave your house and take only 10 things with you (excluding all living beings) what would they be? Cell phone to call people, pen and paper to write with, a box books to read, computer to keep up with the world, my favorite sweater that is a deep wine/cherry (somehow it goes with everything), my medicines, my cane. headphones (cannot live without music), my datebook (otherwise I won’t have a clue what I am supposed to be doing), and sun glasses to shade my eyes because I have sensitive eyes and have migraines easily.
  6. Describe yourself in two words. God’s Beloved.
  7. What is one sporting activity that you enjoy watching? Most anything racing or motorcross related. I grew up with brothers and they were big into fast cars. Now hubby and I are in to motorcross.  He rides, I watch or video whenever I am physically able to do it.
  8.  If you could give one piece of advice for all the world to hear what would it be? Do not be afraid to be vulnerable. There are so many misunderstandings because people do not say what they really feel.  Insecurities hold people back from allowing others to truly know them. Since everyone has had varied life experience, we have a completely unique perception of the world than the next person.  Hoping that the other person will figure out what you are thinking is setting yourself up for communication failure.  
  9. What is your favorite encouraging quote?  “You can’t fly if you don’t jump.” unknown. I am always too scared to jump. I am trying to overcome that. 
  10.  If you had to learn a made up language, which one would you choose and why? Pig Latin because it sounds cool.
  11.  If you were to learn to play an instrument which one would you choose?A very long time ago, I played clarinet and the piano.  If I had my piano, I would still play it. If I had time, I’d love to be able to play the guitar.

My  Questions:

  1. When was the last time you changed your opinion/belief about something major?
  2. If you could make one rule that everyone had to follow, what rule would you make?
  3. What is one of your favorite smells?
  4. What song or artist do you like but rarely admit to liking?
  5. What risks are worth taking?
  6. What small gesture from a stranger made a big impact on you?
  7. What makes a good life?
  8. What’s the title of the current chapter of your life?
  9. If you could make a 20 second phone call to yourself at any point in your life present or future, when would you call and what would you say?
  10. What are some of your personal “rules” that you never break?
  11. If you could have a never-ending candle that smelled like anything you wanted, what fragrance would you want it to be?

My Nominees:

Discovering Your Happiness

Reclaiming Hope

Looking For the Light

My Lil Place

My Loud BiPolar Whispers

Pointless Overthinking

Mom Life with Chiari

The Depression Free Garden

Simply Chronically Ill

Chronic Pain Supergirl

As always, I would love to hear everyone’s answers, but I understand if you are unable to complete it.

Thanks to Simply Chronically Ill for the nomination.

I hope everyone is having a wonderful Sunday.

Much Love and Many Prayer,

Cindy

The To Do List

Through tears after dinner last night, I told my hubby that I finished everything on my to-do list. I was so happy that I had finally done that one more time.

It had been years since I crossed off everything on my daily list of things to get done. Chronic pain had changed every aspect of my life.

Once upon a time, completing daily tasks was something I was proud of doing every day. They were always long lists, and I believed that meant I was having a successful day, that I was a successful person who was not lazy or unorganized.

Whether it was at work or home, it suggested the day had gone smoothly, and I could be proud. The checked boxes indicated I had been prepared for every snag or dealt with them efficiently.

But tonight, I am in severe pain. I was so excited that I placed an “X” in every box, but I was crying because of the physical pain I was enduring from being so “successful.”

Then I realized what I was doing to myself. I was judging myself by the number of checked off boxes on my notepad.

I have worked very hard to change my perspective about living with chronic pain and to live as positively as I can regardless of my situation. I have been diligent in finding what isn’t working and changing it, but this one snuck in on me.

Why do we push ourselves so hard mentally or physically past the breaking point when while living with chronic pain?

So many dreams die one by one when you are diagnosed with a chronic illness. Yesterday was almost as if I was trying to prove to myself I could still do it. Well, I did do it, and it isn’t pretty. I don’t think it was worth it.

Don’t do this to yourself either. You only have one body. That family member that thinks you are lazy or the friend that just thinks you are unorganized isn’t going to donate you their body when yours gives out because you were judging yourself by what they thought of you.

I need to stop comparing myself to others and realize this is my life, not theirs and I’m the only one that needs to be happy about it. I need to decide on new ways to consider myself successful, and I need to nurture those ideas.

Today, I have put aside “the to do list.” I’m going to rest and recharge my batteries. Hopefully, I can start again tomorrow.

Be kind to your bodies out there.

Much Love and Many Prayers

Cindy

Help Support My Misson

Update on the new chronic pain support group I am starting:  I have spoken to a local mental health agency in my county about using their space for our meetings.  They seem to be very interested in the idea of a place they can send their patients who are seeing them for depression and anxiety from either chronic illness or chronic pain.  I think they were just as excited as I am. I am hoping this community agency will be a perfect match for our support group. Keep your fingers crossed.  

 

Check Out My 100th Follower

Yippee!

I hit 100 follows on on June 24, 2018.  I wanted to give a shout out to my 100th follow Phoebe Chi (Puppydoc)-Musings of a Puppy Doc.  

The Puppy Doc shares poetry about being a caregiver as a medical professional and helpful health related articles.

The depth of her caring is evident in her writing.  I hope you will go check her blog out.

Thank you PuppyDoc for helping me reach 100 follows!

Inside My Head Tag

iScriblr_the-inside-my-head-tag

My dear friend SimpliWendi over at Simply Chronically Ill, I am finally completing your reward tag!  Thank you for the nomination. SimpliWendi lives with multiple chronic illness and faces them bravely.  She encourages others with chronic illnesses to live simply for a better life. Please go check out her blog where you will find honesty, vulnerability, and encouragement.

Rules:

° Thank & tag the person that has tagged you

° Attach the tag photo

° Answer the ‘This or That’ questions

° Tag 10-20 friends

 

Here we go:  a little about me……………..

° How do you feel at the moment?

Very excited.  I have a few hours that I can write without interruption.

 

° What do you need more in my life?

I need more self-confidence.

 

° What would make you happy right now?

To see my three grown sons.  They live over 600 miles away from me.  I miss them so much. They come every Christmas, but the time in between passes so slowly.

 

° What is going on in your life right now?

Very beginning of creating a chronic pain support group locally and online and doing chronic pain advocacy.

 

° What am I most grateful for? List 10 things.

  1. God.
  2. My hubby and sons
  3. The gift of writing and expression.
  4. My life situations because looking back, I am one strong woman because of them.
  5. Laughter.
  6. Medicine that helps my physical pain.
  7. The opportunities that this blog has given me.
  8. People that believe in me.
  9. My fan beside my lazy boy because hot flashes are killer.
  10. Pepsi and coffee

 

° When did you experience joy this week? 

Today, sharing laughter with my hubby.

 

° List a small victory/success?

When I started spiraling down into depression, I pulled myself back up in the same day.  I think the tools I’ve learned are beginning to work for me.  All I know is that it is challenging work to be consistent.

 

° What is bothering me & Why?

Family issues because I always believed that “blood was thicker than water,” but through my struggles, I have found that is not true. It’s a death of the dream of what family meant.

 

° What are my priorities at the moment?

I am learning to take self-care for my chronic pain seriously.  When I am consistent with that, I feel so much better.  It helps me to be able to participate more fully in my life and live in the moment.

 

° What do I love about myself?

I can make people laugh.  I love my excitement. I love my new attitude.

 

° Who means the world to me & why?

There are 4 people that mean the world to me and if they read this, they will know I am talking about them.  One reason: unconditional love.

 

° If I could share one message with the world, what would it be?

(SimpliWendi: I stole your answers!!  They were perfect!)

Be nice………..you have NO IDEA what other people are going through.

Be generous……….there are SO many needs in this world.

 

° What advice would I give my younger self? 

Be smarter with my love and respect myself.

 

° What lesson did I learn this week? 

I have to relearn this every week.  I have to learn to be emotionally flexible.

 

° If I had all the time in the world, what would I do first?

I would have to have qualifiers to answer this question.  I would need to know if I would have my chronic pain or not.
With chronic pain, I would be helping people in some way like I am trying to do with the blog and through writing. I don’t want what I go through every day to be in vain, and I don’t want anyone to stay stuck thinking that their life is over because of chronic pain or chronic illness.
Without chronic pain, I would go back to college and get my psychology degree while working to pay for it. (I miss working and interacting with people in person.) Then, I would do the same thing but with even more knowledge to help others.

 

° What’s draining my energy?

Chronic pain constantly drains every ounce of energy.  It really sucks some days when there is very little energy to do basic tasks.

 

° What does my ideal morning look like?

To wake up without an alarm clock.  The noise is a shock to the body and brain.

 

What makes me come alive?

Spring time in the South makes me come alive.  The suns starts warming the earth and everything comes alive.

 

° What/Who inspires me the most?

All of the people with pain in this world that get up one more day and do it all over again.

 

° Where does my pain originate?

This would have to be a series.

 

° What are my strengths?

I am an intuitive thinking and encourager.

 

° What is something I’ve always wanted but too scared to get?

One of the new Ford Mustangs.  I would probably kill myself in it.

 

° What is something I would love to learn?

Calligraphy.

 

° Where would I want to live my ideal life?

Somewhere with many, many more sunny days than rainy days.

 

Where would you like to travel in the next 5 years?

I would love to have a motor home and travel everywhere it can go.

 

° What can I do to take better care of myself?

Say no without guilt or shame.

 

° What hobbies would I like to try?

Pinterest DIYs

 

° When have I done something that I thought I couldn’t do?

I didn’t think I would ever travel again but in the past year I have been to Denver and Chicago.

 

° At the end of my life, what do I want my legacy to be?

She was a Mary in a Martha world. Luke 10:38-42

 

My nominees not in any particular order: 

Discovering Your Happiness

My Loud Bipolar Whispers

LETITGOCOACH

Pointless Overthinking

FightMSDaily

Can’t wait to hear everyone’s answers but if it is not your thing, that’s ok too.

Much Love and Many Prayers

Cindy

 

New International Version (NIV)Holy Bible, New International Version®, NIV® Copyright ©1973, 1978, 1984, 2011 by Biblica, Inc.® Used by permission. All rights reserved worldwide.

 

Chronic Pain Support Group Training

Whew!  I am starting to catch my breath from the trip to Chicago for the chronic pain support group training last weekend.  I am experiencing more pain than I expected, and it has slowed me down tremendously.

But let me tell you about the training instead!  Pain Connection (a program of US Pain Foundation www.painconnection.org. www.uspainfoundation.org) held the training. Every one attending and the leaders were awesome. We all connected almost immediately.  Many different personalities in the room and different belief systems, but we all came together as one to learn how to help the chronic pain community by starting support groups in our local areas. We also learned things that we can apply to ourselves for self-care like guided imagery and meditation.

We went through so many aspects of chronic pain/chronic illnesses and how to have an effective treatment plan so you can have a good life. I will have plenty of topics to write about and use in a support group setting; too many to name it all here today but I cannot wait to share it all.

IMG_2371

My biggest take away is the Treatment Tree. The Treatment Tree idea and planning can help you to find tools and skills for every aspect of your life: physical, emotional, spiritual, social, career, hobbies, and organization. It recognizes that we have many different ways that chronic pain affects our lives and helps us to find solutions that work every day.

I have never had a doctor that considered all these aspects at one time when deciding different medical treatments for me.  We must be our own advocates. I intend to give the information I have learned to you so we both can take it to our doctors so they can see the big picture. We need more than just a prescription!

I also learned more about our pain being so much more than just in the physical area of an injury. There are so many aspects of our lives that affect our pain, and the brain plays a very large role in ways that I never knew before. As I learn more, I will pass it on.

Chicago was nothing like I have heard about it. I pictured dirty and unfriendly.  We seemed to be in a more industrial area in the north west of Chicago.  It was very clean and everyone we came in contact with was very kind and helpful.  I couldn’t have asked for a better trip.

I love meeting new people and hearing their life stories and this was no different.  It exceeded my expectations and I am so thankful that my hubby and I we both were able to complete the training. 

At the end, we had to pick a stone with a word on it and tell why we chose it.  I chose happiness because I have always chased happiness.  I didn’t say anything profound because being put on the spot like that shuts down my brain.  😁  But I always thought happiness was living without any troubles or sorrows and when I got to that point, I’d be happy. But I have found out that happiness can live amongst the troubles and sorrows. With this knowledge, I became unstuck.

JOY IS BUT THE SIGN THAT CREATIVE EMOTION IS FULFILLING ITS PURPOSE.
– CHARLES DU BOS

That’s what this blog is all about: changing perceptions. Changing the perceptions other people have of people with pain and changing our perceptions of ourselves and our chronic pain journey. 

Knowledge is power.  Go out and get you some!

I am excited!! I am 6 followers from 100.  Help me out!  Follow my blog!

Much Love and Many Prayers,

Cindy

Cloud Nine

My head is still in the clouds from the plane ride. I feel completely peaceful tonight. I am exhausted and in major pain but it is worth every wince and groan.

Being validated, knowing someone else “gets it” is empowering. We know we can leave our guard down which makes us more relaxed. And that helps us deal with the pain in our bodies in a more loving way.

I believe support groups or seeing a mental health professional can really help chronic pain patients deal with the constant unrelenting pain and improve their quality of life. It’s all about taking back control, reducing isolation, and keeping your independence.

These past few years you have probably felt like a runaway train recklessly going through the motions to get through the day.  So many people with chronic pain do not have a person that can help support their physical and emotional needs.  A support group can do that.

When you attend a support group you will find others with different pain issues but with almost the exact emotional journeys.

Knowing that others are just like you in that way is validating. Tonight I feel very understood, and I am grateful.

I took a couple of pics with my phone coming in to the airport in Chicago. I am not a professional photographer. It’s just cell phone shots. 😎

This is me. Just happy to be alive and fully partipating in my life!

I hope this helps someone tonight. Maybe you might start a support group of your own. If you would like more information, please contact me directly at validatingchronicpain@gmail.com or through my contact page with the button above in the header.

Please forgive any errors. I am doing this on the fly on my telephone.

Much Love and Many Prayers,

Cindy