I have missed writing, but when I am doing advocacy work, I seem to fall in head first and get lost. It seems like everything is urgent because it takes so long to finally see the results of your hard work. You can hardly tell that you are making any difference. It really is hard work to go in with credible information. I applaud anyone that has made the trip to visit their elected officials and given them an education on what the chronic pain community is going through these days.
I have taken to twitter encouraging everyone in the chronic pain community to get their voices heard by reaching out to their legislators. I had a few people that said they were too scared to speak out because of retribution, ie: they will lose access to the small amount of medicine that they need to be able to function.
I completely understand the fear in speaking out. I feel the same. Knowing that people are afraid to speak out compels me to be the voice for them also. For someone that has no other legal and affordable options than their current opioid medications, it must be agonizing everyday counting their pills and worrying if this is the last bottle before the pain is unbearable. That breaks my heart.
If you decide to go to your representative, here’s a link to find out who you should contact and how to reach them. If you want more information about advocating for the chronic pain community, contact me. There is plenty that can be done from home.
I also began a writing group last week. There are about 8 of us and we are made up of 8 different perspectives, so I’m loving that. So, far it has been mostly timed free flowing writing. I’m excited to see what the future groups will hold. We are all looking for different things from the group.
I am thankful for the gift of writing. Being about to express myself through words is healing. I know most of you that are reading are writers also. Do you stick to one style of writing or do you use different mediums – free write, poetry, prose, spiritual, song lyrics, blog post- to convey your feelings?
I believe that what every you write, whether it’s a tweet or a post, you should edify others. Honor them. I am appauld by the comments I read on twitter and facebook; the unnecessary meanness in the words people type anonymously behind their computer screen. I do not understand why people are so mean.
But let’s be different. Today, make a positive tweet about your life with your chronic illness. Publish a uplifting post about another’s triumph over struggle. Just put some love out there to combat the hate.
Much Love & Many Prayers,